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By Karen Ocamb
Many gays and AIDS activists gasped when President George
W. Bush named Oklahoma Republican Sen. Tom Coburn to serve
as co-chair of the President's Advisory Council on HIV and
AIDS in 2002. After all, he merited a zero rating on the
Human Rights Campaign's Congressional Scorecard and, as the
Washington Post noted in 2004, he once described the "gay
agenda" as "the greatest threat to our freedom
that we face today."
But on Feb. 28, Michael Weinstein, president of AIDS Healthcare
Foundation, co-hosted a press conference with Coburn in support
of the senator's new bill reauthorizing and amending the
Ryan White Care Act. Coburn, a doctor, was actually the primary
sponsor of the CARE Act reauthorization signed into law in
2000, which expired on Sept. 30, 2005.
"Sen. Coburn's proposed amendments will allow the
CARE Act to better respond to the current state of HIV/AIDS,
and significantly improve the delivery and effectiveness
of care and services nationwide by recognizing that AIDS
is first and foremost a medical issue," Weinstein said. "HIV
is now a chronic, but treatable medical condition. However,
funding still largely reflects a time when HIV/AIDS was a
terminal disease. The Ryan White CARE Act must be updated
to reflect changes in the disease and its demographics. It
is time to end the national embarrassment of having people
living with HIV/AIDS in 10 states on waiting lists to receive
life-saving anti-retroviral treatment, while many areas around
the country spend disproportionate funds on administrative
costs. This timely proposal will be an effective tool in
ensuring the best use of federal dollars and improving delivery
of HIV/AIDS care and services to those Americans most in
need."
"As a physician, I have personally cared for many
of those who depend upon CARE Act funds and I know firsthand
how critical the program is to meeting the needs of more
than half a million Americans living with HIV/AIDS. The CARE
Act must be reauthorized and restructured to meet the changing
needs of the AIDS epidemic," Coburn said. "Despite
spending more than $20 billion annually on HIV/AIDS at the
federal level, up to 59 percent of Americans with HIV are
not receiving proper treatment and nearly 40,000 Americans
become newly infected annually with HIV. Increasingly, HIV/AIDS
is a disease that affects minorities, with African American
women representing the fastest growing proportion of new
cases. The proposed Ryan White CARE Act amendments of 2006
address disparities of care by prioritizing early diagnosis,
expanding access to primary medical care and treatment, and
better targeting federal resources to communities where the
epidemic is growing to ensure that our focus remains on where
the disease is today and where it is headed."
The Ryan White CARE Act Amendments of 2006 were written
with input from AHF and many other AIDS community leaders,
according to an AHF press release. The amendments are designed
to re-prioritize and create new funding formulas that "would
take into account HIV prevalence, require that 75 percent
of CARE funding is spent on primary care, require that facilities
that receive federal funding conduct mandatory HIV testing
and increase annual funding for AIDS Drug Assistance Programs," according
to a Kaiser Family Foundation summary. Additionally, Coburn
said his bill "prioritiz[es] early diagnosis and access
to primary health care and treatment and increas[es] accountability
for how funds are spent."
"A number of the bill's features reflect many of the
improvements our members have deemed necessary to transforming
the health care they provide for their patients living with
HIV/AIDS," Dr. Howard Grossman, executive director of
the American Academy of HIV Medicine, said in a statement. "We
are glad to see the proposed improvements to the AIDS Drug
Assistance Program (ADAP), namely the minimum formulary under
ADAP as well the increases in funding authorizations for
the program. We are also pleased by the proposed coverage
of care and treatment for those co-infected with hepatitis
B and hepatitis C."
Grossman expressed "concerns" about a number
of the bill's provisions, however, including the mandatory
75 percent of funds for primary care and treatment. "Our
members, who provide care for more than 350,000 patients,
are very clear in the message they communicate to us: Primary
care includes more than drugs and doctors' visits. AAHIVM
strongly recommends that primary care be more broadly defined
to include other critical aspects of care like treatment
adherence counseling and substance abuse counseling, and
are happy to engage in developing a more accurate definition
of 'primary care' than the one the bill currently offers."
Craig E. Thompson, executive director of AIDS Project Los
Angeles, also expressed concern about the 75 percent standard. "The
Republicans have made 'local control' the mantra of their
party," Thompson said in a statement. "Yet Sen.
Coburn is advocating a top-down funding scheme that can only
inhibit the local jurisdictions who know best how to spend
their Ryan White funds. More importantly, this sort of mandate
will also hurt the very groups -- such as women and communities
of color -- that Sen. Coburn says he wants to help. Today,
the majority of people living with HIV/AIDS are poor and
marginalized people who need more, not fewer, support services.
It doesn't do any good to fund a medical clinic but take
away the bus pass a poor person needs to get to her appointments."
Additionally, Thompson said, cities like Los Angeles "should
not be forced to cut back on vital support services such
as mental health services, child care, food banks, treatment
education and case management in order to satisfy an ill-considered
mandate from Washington."
With more than 1.1 million Americans living with HIV/AIDS,
he noted, the number of people often requiring CARE Act services "grows
by some 22,000 each year."
Florida Republican Congressmember Dave Weldon intends to
introduce a companion bill in the House of Representatives.
For more on Coburn's bill, go to www.coburn.senate.gov.
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